Archive for October, 2009

LYMPHEDEMA SECONDARY TO OBESITY

Wednesday, October 21st, 2009

So where do I start?   My desk is covered with photos of patients who have lower extremity lymphedema secondary to obesity. These patients and their therapists are obviously frustrated for they feel they have come to the end of the road. Unfortunately, all too often that is true.  As I’ve said before, a JoViPak® garment may not be their best answer. What is?

As a European-trained lymphedema therapist, I never thought I would say this -  the best answer may be a pneumatic pump!  I was thrilled to learn that Lympha Press® has expanders for their pumps and they are currently focused on finding solutions for the morbidly obese.  So think about it:  these patients are past the point of being able to exercise and most of them still have their inguinal lymph nodes.  So why not get them on a pump?  How else are we going to get the fluid moving?   With Lympha Press’ new bariatric pant design that also drains the truncal area, the patient’s lymphedema should come down fairly quickly. At that point I’ll be happy to make a JoViPak garment for the patient – particularly if they have fibrosis. We may even be able to provide JoViPak padding for use under the pump if it helps speed the process and/or makes the patient more comfortable.

You have to know by now that I can’t ignore the other major piece to this obesity puzzle and that is nutrition.  Stay tuned, as I’ve just finished reading a marvelous book that I’m sure will be helpful for all of us.

Blog Comments

Thursday, October 15th, 2009

Social Media can be a lot of fun and my only frustration with it at this point in time is finding the time to do it.  I think of a multitude of things to blog about each day, and I just need to get into a routine of getting them down in print.

I  am grateful to those of you who have made comments but I need to explain why I have not posted them.  Anyone getting a cancer diagnosis has a lot on their mind.  In fact, they are terrified which makes them very vulnerable to anyone who, with all good intentions, passes along the “perfect remedy” or solution.  I know . . . . I’ve been there.  And over the years that I have treated cancer survivors who are also dealing with lymphedema  I have discovered that for many, lymphedema is even more difficult to cope with than the cancer.

For those of you who have experienced lymphedema or have loved ones who are struggling with this condition, there is a plethora of information out there (finally!). . . a lot of which is contradictory.  In fact, many patients go into overwhelm and ultimately choose to do nothing to help themselves. In this instance the myriad of information and well-intended suggestions are counter-productive.  Sound nutrition often falls into the same abyss.

It is not that your comments wouldn’t be helpful to others, but unless it pertains to a book that I have read, or a treatment protocol that I have found successful for myself or one of my former patients, I hesitate to make recommendations.  As a cancer survivor with lymphedema, nutritionist and someone who has treated lymphedema patients for nearly 18 years, I can only pass along information relevant to my own experiences.

If you have ever attended my self-care classes, you know I would rather you had enough knowledge of the lymphatic system and understanding of your own limitations that YOU are able to make intelligent decisions regarding your own management regimen.

Lynn Fass, RN and I have taught patient self-care since 1993.  These six-hour classes are offered four times a year at the Northwest Lymphedema Center in Kent, WA.  Previous classes have been video-taped and can be viewed on the NWLC website: www.nwlymphedemacenter.org.  I encourage both patients and their caregivers to attend the class or watch the videos.   They can email me (joann@jovipak.com) with any questions they may have.   I am happy to post these questions and my answers on this blog whenever I feel they would be helpful to others.