Posts Tagged ‘Self-Care Class’

Cherry Pits

Wednesday, July 7th, 2010

Since we are currently in the peak of cherry season it seems an appropriate time to talk about the pits.  This last weekend  at a 4th of July party I had an opportunity to talk with a business owner and long-time family friend who cans 100 tons of cherries a year.  I just had to ask him what he does with the pits and was surprised to learn he uses them to surface the roads throughout his orchards.  Well I have to tell you he was quite surprised to learn we are using cherry pits in our JoViPak garments.

I know this sounds a little crazy, but when fibrosis gets to the “woody” stage, foam chips just don’t do the job.  We can thank Karen Ashforth, OTR/L,  CLT-LANA, from Dominican Hospital in Santa Cruz, CA for this idea.  We first tried buckwheat hulls which ended up in my garden.  They are a great mulch, but I was not happy with the way they splintered inside our garments, plus they will not hold up with repeated laundering.  Karen is not someone who gives up easily and wanted us to try cherry pits. She even found a company who sells cherry pits to hobbyists for microwaveable neck pillows.  Once she discovered how well these pits worked on her patients with long-standing fibrosis, she offered to do a clinical trial.  (You can access this information by going to our website, www.jovipak.com and clicking on the “What’s New” page.)

The first patient I tried one of these new JoViPitPaks® on was someone I had treated in my clinic 17 years ago.  Over the years she had maintained fairly well with daytime compression garments, but over time had developed  fibrosis at the base of her toes.  I took her  to the Northwest Lymphedema Center, where Lynn Fass, RN, CLT, does her consultations, and put the patient on the treatment table.  As we caught up on old times, I held one of the small crescent-shaped JoViPitPaks firmly over the problem area.  In about twenty minutes we checked and to both of our amazements the fibrosis was soft and pliable.  I gave her the pad and will always remember her parting words as she backed out the front door holding up her JoViPitPak,  “I just love this thing!”

JoViPitPak Axilla Pad

JoViPitPak Axilla Pad

So we have all come to love JoViPitPaks, and just so you have an idea of what we are excited about, we are including a photo of the new axilla pad.  We are adamant, however, that anyone interested in using these products understand they are very aggressive, to be used under compression for very short periods of time under the supervision of a lymphedema therapist. This is not a product one would send their patient home with for overnight use.

Karen regularly sends us drawings for custom-made JoViPitPaks® and as we develop new products that we feel would be helpful for a wide range of patients, we will add them to our inventory.  It is clear this project will continue to evolve and we will do our best to keep you informed either by our blogs or  our website.

Microwaves and Agave Sweetener

Tuesday, May 18th, 2010

As you may have guessed, I subscribe to a lot of health related newsletters, but I must tell you my favorite is Dr. Mercola’s  (www.mercola.com).  He must have a huge research team; no one person could keep up on all of the latest information as well as he does.  Today’s article explains why the Russians have banned microwave.  I know . . . you didn’t want to hear that either, but we need to know.  I had heard that the nutritiant content of brocolli was tested before and after microwaving at one of the  ACAM (American College for the Advancement of Medicine) conferences and, to no one’s surprise, all of the nutrients were destroyed in the microwaved vegetable.

Before I leave I also wanted to find an article on Agave sweetener and, sure enough, there was one on Mercola’s website (March 30th). . .  the title, “Shocking! This ‘Tequila’ Sweetener is Far Worse than High Fructose Corn Syrup.”   As we know, fructose appears to be the primary cause of our obesity epidemic. . . . .Just a couple more things for you to ponder and, hopefully, a little more reading for you while I’m gone.  Stay healthy.

Recommended Reading

Monday, May 17th, 2010

My office manager kept pulling our complimentary copy of the “Breast Cancer Wellness Magazine” from the bottom of my reading pile with the comment, “You really need to read this.”   I’m so glad I did and I was thrilled to find the article “Dangerous Foe in a Sweet Disguise” by Christine Horner, MD. She makes the connection between sugar consumption and cancer.  I’m  amazed how few cancer survivors are aware of this.  Yes, giving up sugar is difficult, but if you can find a brand of Stevia you like, it is a lot easier.  (The Stevia plant is indigenous to Paraguay and is 300 times sweeter than sugar.) As Dr. Horner explains, “Cancer cells love sugar.  It’s their preferred fuel.  The more sugar you eat, the faster cancer cells grow.”  There are several other reasons to avoid sugar, but for those of us who have been through the cancer experience and are concerned about a recurrence, it’s imperative.  I noticed in Bill Henderson’s book, “Cancer Free:  Your Guide to Non-toxic Healing” he lists three safe sugar substitutes:  Stevia, Agave Syrup and Xylitol.  I had been keeping Agave syrup in the break room for my employees, then discovered at the Nutrition Conference it was no different than high fructose corn syrup.  (Ooops!)  As more research is done the guidelines change and just keeping up with all of this can be a full time job.  (I’m doing my best to stay informed so I can pass the most recent information on to you.)  Perhaps the best approach is to stay away from all sweetners, artificial sweeteners in particular, and give your taste buds a chance to adapt so you can ultimately enjoy the natural sweetness in whole foods.

I’m leaving next week for Europe so there won’t be any blogs for a few weeks.  In the meantime, however, let me recommend two more incredible books:  1) The “Vitamin D Solution” by Michael F. Holick, M.D. There has been so much information published lately on Vitamin D, which really isn’t a vitamin at all:  it’s a steroid hormone and you have to have cholesterol to produce it!  I’m sure you will appreciate Dr. Holick’s clarification on safe sun exposure as well as the connection to Vitamin D deficiency and cancer. 2) “Statin Damage Crisis” by Duane Graveline, M.D.  is a must read for anyone taking statin drugs.  This book also gives you a better understanding of the vital role of cholesterol in our bodies.  Dr. Graveline was a USAF flight surgeon and a NASA scientist astronaut.  His research on the adverse side effects of statin drugs was generated by his own experience with transient global amnesia six weeks after he started taking a statin drug.

Happy reading and I’ll get back to you in late June.  I’ll be spending a lot of time on airplanes and will have plenty of time to read more books.  Stay tuned.

The Power of Music

Thursday, April 29th, 2010

I would like to share a story with you as I think it contains some meaningful messages.

Last weekend two friends with a truck drove me to Yakima (on the other side of the State) to pick up a piano for my office. (That is a different story.)

On our way back we took a little detour so I could drop off some CD’s for my best friend.  . . . .but I need to explain.

We have been best  friends since we were two years old (and that is a long time!).  She had as close to a perfect marriage as anyone I had ever known and after  her husband died it was painful to watch her health decline.  It was as though she was dying of a broken heart.  She lost 80% of her heart capacity, and could barely walk across the room or speak in full sentences.  About a year ago she called me and said she had her energy back and was feeling great.  She explained she had met up with an old high school friend and he had taken her dancing!  I suggested she continue whatever she was doing as it was obviously working.

I went to see her last Christmas.  We went out for dinner, reminisced and laughed a lot.  It was just like old times and I was so relieved to see her doing so well.  Then, on New Years Eve as she was sitting in front of her TV eating dinner, she had a stroke and has required around-the-clock care ever since.  She has been confined to a wheel chair and her only walking has been with the help of  her physical therapist using a gait belt.

So back to the CD’s I took to her, one of which is my favorite, Beegie Adair’s newest album, “Swingin’ With Sinatra”  (GreenHill Music – it’s also the music you hear when you call JoViPak.)  She called me the next day and was so excited.  She loved the music, especially “You Make Me Feel So Young,” and  said, “my friend came over and WE DANCED TO IT!  I said, “You what?!  Did your friend have to hold you up?”  She said, “No, he couldn’t, he has a bad back!”  I considered it something close to a miracle and it reminded me of the value of friendship and the power of music.  Also, as I’m sure every  therapist will agree, there is  no greater satisfaction than knowing we have done something to make someone else’s life a little easier.

Medicare coverage for lymphedema

Tuesday, April 20th, 2010

It’s been a busy week.  Carol Johnson, OTR/L from North Carolina has recently joined the JoViPak staff and we spent most of our time last week working on product development and writing letters to our legislators in Washington D.C. asking for their support of the House Bill 4662.  (Refer to my previous blogs.)  As therapists we want our lymphedema patients to have the best care possible and it is very difficult for us to watch our elderly clientele go without because Medicare won’t pay for their treatment or the products they need to manage their condition.

The author of this bill is Bob Weiss whose wife has struggled with lymphedema for years.  It continues to amaze me how much effort and personal expense he as invested into being an advocate for the lymphedema community.  Both he and Carol will be meeting with several legislators next month in Washington D.C. to discuss the various aspects of this bill.

As we get caught up in our enthusiasm over the possibility of Medicare paying for lymphedema treatment and supplies, we can’t ignore one serious ramification.  What if Medicare takes it on and gives lymphedema supplies, e.g. compression garments, HCPC billing codes and reimbursement amounts that are far below the cost to manufacture these products or the wholesale cost to resellers.  It is safe to assume that once Medicare establishes a price, other insurance companies will follow.  If in doing that, we force the manufacturers and the DME’s who sell these products out of business, then what?  Where does that leave the patient?  Will they have to look to other countries to provide them with cheaper and quite probably inferior quality products?

Please ask your legislators to support this bill, and it is important that you also ask them to consider, as well as support those people providing the goods and services by acknowledging their right to charge the patient for any shortfall not covered by the Medicare reimbursement.

Say No to GMO

Friday, April 9th, 2010

Of all the presentations at the nutrition conference, I have to say Jeffrey Smith’s lecture on Genetically Modified Foods had the greatest impact on me.  I thought I knew what GMOs were all about, but I had no idea the extent of their risk to our health and environment.  Genetically modified organisms (GMOs) have been linked to toxic and allergic reactions, thousands of sick, sterile, and dead livestock, and damage to virtually every organ and system studied in lab animals.

Do you remember when the supplement L-tryptophan was taken off the market and we were all afraid that might be the end of all supplements?   There were 100 deaths and thousands became sick or disabled.  It took years to find the source and guess what . . . . the supplement itself was not the problem.  The contaminated products all came from a lab using genetically engineered bacteria, and if all the victims had not experienced one shared symptom of intense debilitating muscle pain (myalgia), the cause might have remained undiscovered. The disease it created was called EMS or eosinophilia myalgia syndrome as it also raised white blood cell count high enough to indicate a severely disrupted immune system.  What is really unsettling about all of this is the fact that we have unknowingly been eating genetically modified ingredients since 1996 and there are still no safeguards for GM-produced food or supplements.   Since there are no warning labels on any of the genetically modified foods we consume in America, (GMOs are not allowed in Europe) it is imperative that we educate ourselves and “opt out of this high-stakes gamble by refusing GM foods.”  I urge you to go to www.ResponsibleTechnology.org and click on Mr. Smith’s video.  It is an 85-minute lecture, similiar to the one I heard two weeks ago and I guarantee once you have seen it you will have an entirely new attitude about the food you choose to buy for yourself and your family.  I suggest you download his Non-GMO Shopping Guide as you will find very helpful in identifying the safe foods as well as those that are at high risk, e.g. the “Big Four” - Corn, Soy, Canola and Cotton.  (Another good reason to avoid vegetable oils!)

Jeffrey Smith has authored several books on Genetic Engineering.   His first book,  ”Seeds of Deception” was required reading in my nutrition class.  His latest book is very appropriately named, “Genetic Roulette, The Documented Health Risks of Genetically Engineered Foods” and he has created a Web site, www.GeneticRoulette.com, to promote serious scientific debate on the details presented in his book.

It was pressure from concerned consumers that got the genetically engineered bovine growth hormone (rbGH) out of our milk. Let’s do our part to get genetically modified organisms (GMOs) out of our food.

Nutrition Conference

Wednesday, March 24th, 2010

The NTA (Nutritional Therapy Association) Conference was held in Vancouver, WA  this last week end where I attended 18 hours of fantastic lectures. I took 50 pages of notes and brought back so many new nutrition books I could hardly carry them to my car.  A friend of mine came up from Salem, Oregon to join me for dinner.  She spent several hours in the hotel lobby and commented she had never seen such a large group of people where everyone looked fit and healthy!  Perhaps she had never been in a room with 200 nutritionists before! . . . Neither had I for that matter.

I go to two kinds of conferences . . . either for lymphedema or nutrition and recently realized I much prefer the latter.  Why, you might ask?  Well, we pretty well understand most lymphedemas, but what we as therapists are not getting is how often  underlying factors  are complicating the therapy and interfering with the recovery process.  We can start with endocrine system or hormonal imbalances, chronic inflammation most often caused by food intolerances and sugar handling issues.

Case in point:  Upon my return, I met with a lipoedena patient whose therapist had ordered a JoViPak vest.   The patient was particularly concerned about her abdominal swelling which she thought was a result of her double mastectomy. I was grateful the patient lived close to Seattle and was willing to make the trip to our facility as I really needed to see her before I could, in good conscience, proceed with the order.     She was missing only two axillary lymph nodes and after seeing the patient in person, I assured her a vest was not going to fix the problem.  The amount of water she was retaining was a clear message that something was horribly out of balance in her body and needed  immediate attention.   At this point in time I believe she  needs to find a good nutritionist and  a doctor who can do appropriate testing to correctly diagnose the source of her problem.

I was pleased to learn that NTA is now offering their Nutritional Therapist Training Program  throughout the United States.  They are available in both Classroom and Distance Learning Formats.  I want to encourage lymphedema therapists to learn everything they can about nutrition (from a holistic point of view) as they will find it extremely valuable in their practice. They can not only help  their patients better manage their lymphedema but  quite possibly guide them out of the disease cycle.

You can get more information on nutrition training by calling NTA directly at 800 918 9798 or visit their website www.nutritionaltherapy.com.

Dietary Supplement Bill is dead!

Friday, March 5th, 2010

Word just came in from the Alliance for Natural Health USA that the hundreds of thousands of messages opposing Senator McCain’s Dietary Supplement Safety Act (S 3002) have made a difference.  Apparently Senator McCain met with Senator Orin Hatch, a champion of natural medicine, and decided to withdraw his support for the bill he authored.

Thanks to all of you who wrote to your congressmen.  It’s nice to know someone in Washington, DC is listening to us.

Lymphedema Diagnosis and Treatment Saving Bill (H.R. 4662)

Friday, March 5th, 2010

Yes, there may be some light at the end of the “lymphedilema” tunnel, but we need you to get involved.  How many years have we been trying to convince Medicare that treatment for lymphedema is imperative if we are going to avoid costly complications (not to mention quality of life issues)? Thanks to patient advocates like Bob Weiss who refused to give up on this endeavor, a bill has been introduced to the House of Representatives.  If we are going make this happen we need to ban together and let our legislators know we need their help getting this bill passed.  If you have been struggling with lymphedema as well as the inability to get insurance reimbursement for treatment and/or supplies, you understand how important this is.

You may be interested to know this bill was introduced to the House of Representatives February 23, 2010 by Congressman Larry Kissell of North Carolina.  Last July a similar bill  passed in the  North Carolina legislature (H.R. 535).   Lets hope we can get a similar bill passed for the State of Washington.  Getting one passed at the national level would certainly make it easier.

Don’t Shoot the Messenger

Monday, February 22nd, 2010

As a cancer survivor who turned down chemotherapy 21 years ago, I’m always interested to hear about others who advocate natural medicine.  Suzanne Somers is at the top of my list and I was thrilled to hear she was asked to be a guest on the O’Reilly Factor.  Of course, she too, is unhappy about the McCain Supplement Safety Bill, and probably equally unhappy about Mr. O’Reilly’s response. Mr. O’Reilly feels the government should at least monitor what is in the supplements and require warning labels.  That makes sense, but do we really believe government control would stop there?

So here is what bothers me the most about Mr. O’Reilly’s argument and it is so typical of why we are all falling prey to degenerative diseases.  Apparently, rather than succumb to a pharmaceutical drug to lower his cholesterol, he tried another “quick fix” which he considered to be a natural alternative – red yeast.  After a few months of taking the red yeast, his doctor discovered his liver enzymes were spiking and Mr. O’Reilly was angry that he had not been warned there would be any side effects.  So what is wrong with this picture?  Did his doctor make an exhaustive effort to find out why Mr. O’Reilly had high cholesterol in the first place? Was his high cholesterol an indicator of inflammation?  If there was damage or weakening of the arterial walls, cholesterol would do what it could to repair the damage.  Why would we think a pill of any kind could fix the problem . . in other words, why would we just “shoot the messenger?” It is the reason tests for inflammation indicators, e.g. homosysteine and c-reactive protein have gained favor as indicators for potential heart disease.  Prior to taking any kind of cholesterol suppressant we all need to fully understand why we have cholesterol, how the pills work and what happens when levels are too low?  (It is the base of our sex hormones, if that tells you anything!)

My heart goes out to those well-meaning patrons of the supplement stores who wander in and are at the mercy of the clerk behind the counter.  Without a comprehensive education in nutrition and a sound understanding of our own bodies, how would be know what to ask for?  Balancing hormone levels, tracking adrenal and thyroid function, sugar regulation and colon health are all essential to our making intelligent choices. Finding a doctor or nutritionist who can guide us in this area of natural medicine, however, is a challenge all its own.  So you can get this into better perspective, may I suggest you read Jack Challem’s book,  “The Inflammation Syndrome.” (I noticed Amazon is offering a special on it today.)

If you have read any of Ms. Somers books or just taken a good look at her, it’s obvious this lady has done her homework.  To me she is one of the real heroes. Until we start educating ourselves on the long-range side effects of many of the pharmaceutical drugs, insist on accurate diagnosis rather than symptom management, and acknowledge the benefits of natural supplementation in supporting the body during times of stress, we will likely continue to be the unhealthiest industrialized nation in the world.